Posted in Developmental disability service system

Agencies will ‘protect’ staff but not you, even if you’re more in danger.

There’s nothing wrong with protecting staff from on-the-job injuries.  In fact that’s a good idea.  But that’s not really what this is about in the first place.  That’s just what they say it’s about.

Despite the fact that many people with developmental disabilities are physically disabled, my local agency does not like giving us help doing things we are physically unable to do.  So they come up with a long list of excuses why it’s not possible for them to do those things for us.  One of those excuses is staff safety.

I have severe osteoporosis, to the point I’ve actually broken a rib by sleeping on it wrong, developed a stress fracture in my spine without anyone knowing what precisely caused it, broken a hip, and broken so many ribs that x-rays and CT scans of my chest no longer include a number of healed rib fractures, just “multiple”.  It’s ridiculously easy to break my bones.  I also have congenital myasthenic syndrome, which means that my muscles, while capable of strength at their best, wear out and weaken more easily and unpredictably than average.  The combination makes falls more likely and dangerous, especially when combined with an endocrine condition that can turn a broken bone into a life-threatening emergency and that can cause its own weakness once that happens.  And there’s more, I just thought three conditions would be more than enough to get the point across.  There’s years worth of documentation of these things and more, so my agency can’t claim ignorance.  Especially since they go with me to all my medical appointments.

So there is a lot of bending, lifting, and basic physical work that I either shouldn’t be doing at all, or should be doing in a heavily modified fashion.  I need the same precautions around certain activities that would be typical of an elderly person with unsteady balance and fragile bones.  When I go out, I use a walker to get around because I fell too often using canes and crutches.  The walker also makes it hard or impossible to lift or carry certain things, including other assistive technology that’s vital for me.

Anyway, the agency won’t let staff lift a messenger bag I carry with basic equipment I need for communication and feeding tube maintenance.

At first they wouldn’t even explain why.  They’d just give it to me and insist I do it, no matter how I was feeling, no matter how unsteady it made me on my feet, no matter how much pressure it put on my muscles and joints, no matter how unsafe it made use of the walker.

When I finally started insisting on reasons, they told me it’s because staff can injure themselves carrying things and that they have a policy that staff are not allowed to lift or carry anything for clients, even messenger bags.

I asked what they do if the person really can’t lift the thing.  They got a bit squirmy.  Then they said they work something out that works for everyone.

They never did work anything out for me.  They never even tried.

They did tell me that people injure themselves lifting bookbags.

Which I could believe.

But I have objections to this as their real explanation for what’s going on.


There’s another agency locally where every client is physically disabled.  Staff for that agency are trained in safe lifting practices.  I don’t mean lifting entire people.  I just mean they are required to be able to lift at least a certain amount of weight, and they even have to pass a lifting test to be able to take the job.  They have to both be capable of lifting a certain weight of object over their head, and be capable of demonstrating that they know how to do so safely.

On the other hand, this local DD agency just pretends there’s no such thing as safe lifting and that nobody needs to be trained in it.  Nor do they provide equipment to aid in lifting if direct lifting isn’t possible.  Not even people who work with physically disabled clients.  Of which there are many, because many developmental disabilities have a physical component.

What also gets me about this concern for staff safety, though, is that there is no concern for my safety at all.  They know precisely why it is unsafe for me to be lifting and working in certain ways.  They know precisely why it is impossible for me to do certain things, and dangerous for me to do others.  They know exactly what injuries to my body and even dangers to my life can result from the expectations they are placing on me.

Yet when push comes to shove, I’m the one supposed to be doing bending and lifting that will injure or harm me if I do it long enough, and staff don’t have to do anything.  I’m sure that staff can be injured by bending and lifting, especially if they are not properly trained in how to do it.  But the chances of me being injured, and injured more severely, are much higher.  And nobody has shown any concern for what will happen to me if forced to do these things.  Until I asked “What do you do if someone can’t do this stuff?” they didn’t even think about other solutions.  And honestly they didn’t even think much about other solutions after that.

The thing is, the actual requirements of their job don’t extend only to helping us out with cognitive limitations.  If we have physical limitations, they are required to deal with those.  They can’t just pretend they don’t happen.

I think it would be terrible if they didn’t care about worker safety.  But my gut tells me this has nothing to do with worker safety, because they don’t really seem to care much about that either unless it’s a handy excuse for something else they don’t want to do.  And if they did care about worker safety, they would care about training every single worker in basic lifting practices.  They don’t provide that training to anyone I’ve ever heard of.

I also find it telling that whenever it comes to a conflict between my safety and worker safety, worker safety wins out.  Even if the situation is only a potential abstract danger to a worker, and has already proven itself an existing concrete repeated danger to me.  Not that it should be a choice between either one.  An agency acting properly would protect both its employees and its clients.  But it’s interesting how no matter how physically fragile you are, it’s always better to them to endanger you than to ‘endanger’ a physically fit able-bodied worker by having them do something that ordinary people do every day on and off the job.

So basically if anyone’s body is gonna break, they want it to be mine or another client’s, as far as I can tell.  At least that’s the story their repeated actions towards us spell out.  And I am still convinced the concern for worker safety is mostly bullshit, or they’d be protecting them better as well.



Hufflepuff. Came from the redwoods, which tell me who I am and where I belong in the world. I relate to objects as if they are alive, but as things with identities and properties all of their own, not as something human-like. Culturally I'm from a California Okie background. Crochet or otherwise create constantly, write poetry and paint when I can. Proud member of the developmental disability self-advocacy movement. I care a lot more about being a human being than I care about what categories I fit into.

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