Posted in Uncategorized

We need real money badly.

I am going to run out of crucial meds. This is me shamelessly begging for money. You can paypal it to webmuskie@gmail.com. It needs to be real money, not a gift card, because we have to use it at the pharmacy. If the pharmacy is open. And it needs to be a whole lot of money because meds are expensive and we are running out of ones that will keep me alive. Also we really need respite. Laura says a few more days of this could kill her, having to take care of me. I keep trying to take a load off her but somehow making more work for her. This isn’t sustainable and we are trying to survive. So I have no shame in begging, something is massively messed up with my benefits I have no access to them. Please help please someone help ideally lots of people help. Also Laura says her wishlist works now. We are both under unbelievable stress. She has an autoimmune disease that can flare and kill under stress. This is no joke. This is not trivial. We need a metric crapton of real money. Or we will both die here. Everyone dies but I want to die of a disease or old age the way most people do, I do not want to die of preventable stupidity. Please help. Please help us. We are running out of everything. Please, please, please help.

Author:

Hufflepuff. Came from the redwoods, which tell me who I am and where I belong in the world. I relate to objects as if they are alive, but as things with identities and properties all of their own, not as something human-like. Culturally I'm from a California Okie background. Crochet or otherwise create constantly, write poetry and paint when I can. Proud member of the developmental disability self-advocacy movement. I care a lot more about being a human being than I care about what categories I fit into.

4 thoughts on “We need real money badly.

  1. Reblogged this on Chavisory's Notebook and commented:
    Hi everybody–I know this is a hard time for a lot of people, especially those of us who have suddenly lost work. But Mel and Laura, whose work and advocacy has been absolutely integral to the autistic and disability rights communities for decades, urgently need help right now, and if there’s anything you can send their way, it would mean the world to me.

    Liked by 1 person

  2. Hey Mel – a friend said that if you or Laura can, you should contact Barb Prine of the Disability Law Project in Burlington (part of Legal Aid) to help get the benefits straightened out, and also that Medicaid should be taking care of medication costs. I know this might not be possible to do right now so please let us know if it would help to have someone else call them!

    Liked by 1 person

    1. Sorry but that would be very naive about the rights of dd ppl in Vermont. We have pretty much none and only on paper for others to ooh and ahh at. In practice the only way to see her is to already know ppl & she won’t represent you only advice you.

      Liked by 1 person

      1. Yeah, I know a lot of legal orgs end up being unhelpful at best and outright trash at worst. Would it be helpful for any of us to call the state? Or find someone who might actually represent you in fighting the state?

        I’ve also sent a little money – I wish I could afford to send more. And I’ve shared your ask for money with other people too so I hope that helps.

        I’m sorry things are so fucked. You don’t deserve this.

        Liked by 1 person

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